Amy Kuebelbeck Knihy

Kniha o čase, který je darem, je ojedinělá. Autorkami jsou Amy, novinářka a matka, a Deborah, vývojová psycholožka a odbornice na novorozeneckou lékařskou etiku a perinatální smrt. Výsledkem autorské spolupráce je osobní, čtenářsky poutavá a velmi působivá kniha o tom, jak se vyrovnat s perinatální ztrátou nebo smrtí novorozence v důsledku smrtící anomálie. Podrobně vysvětluje koncept perinatálního hospice a vybízí rodiče, aby prožili s odvahou a odevzdanou radostí ten zvláštní, i když krátký čas se svým dítětem. Knihu z angličtiny přeložila Zora Freiová.

Caring and thoughtful, the book helps parents embrace the extraordinary time they will have with their child.

When Amy Kuebelbeck was told that the child she was carrying had a fatal heart condition, she and her husband were faced with an impossible decision: to give their baby a chance at life--and with it, enormous pain and suffering--or to let their baby die naturally, most likely just a few weeks after birth. The unforgettable journey that ensued would change not only their lives, but also the lives of everyone who came in contact with them, from family and friends to healthcare workers and complete strangers. Written with beauty, grace, and undeniable honesty, Waiting with Gabriel is ultimately a story about what it means to cherish life in the midst of letting go.

"This book describes and affirms the wide range of experiences and emotions that can follow a life-limiting prenatal diagnosis. It offers encouragement and practical ideas for moving forward, including guidance for decision-making, strategies for coping with the remainder of your pregnancy, and ideas for nurturing and being with your baby, before and after birth and death. This book also describes the concept of perinatal hospice and palliative care, which is a well-established way of supporting parents whose babies are expected to die before or shortly after birth"--