Experiences of Families Who Care for Respiratory-Dependent Children

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The book delves into the experiences of five mothers caring for children who require home respiratory support, highlighting the challenges they face after hospital discharge. Four key themes emerge: varying parental knowledge about their child's condition, insufficient post-discharge information, poor communication from health professionals, and inadequate support systems. The study emphasizes the primary caregiving role of mothers and advocates for a designated key worker to enhance communication and coordination between families and healthcare services, ultimately aiming to improve the care experience.